Rare Disease Awareness Event Postponed by US Health Agencies
2025-02-21
Reuters
A two-day meeting focused on raising awareness about rare diseases among policymakers and the general public, initially set for late February, has been postponed, according to an update on the US Food and Drug Administration's website. This event aimed to highlight the importance of rare disease research and treatment options, such as gene therapy and orphan drugs. The postponement may impact rare disease advocacy efforts, but organizers are expected to reschedule. Rare disease awareness is crucial for improving patient outcomes and promoting medical innovation. The event's new dates will be announced soon, allowing attendees to plan accordingly and continue supporting rare disease communities.
